www.PeterPereira.com Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PHOTOS PETER PEREIRA
1manb_N8A9065 Nurse Stephani Taber uses an inflatable device to loosen secretions to prepare Alex before he goes to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
2manb_N8A9065 Nurse Stephani Taber uses an inflatable device to loosen secretions to prepare Alex before he goes to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
3manb_N8A9017 Nurse Stephani Taber massages Alex's back first thing in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
4manb_N8A9085 Mother Jenessa Gerard-Pateakos prepares to go to work, next to her a collage of photos of Alex through his young life. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
5manb_N8A9160 Jenessa Gerard-Pateakos checks in on her son Alex as nurse Stephani Taber performs the daily rituals before sending him off to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
6manb_N8A9043 Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
7manb_N8A9040 A plethora of medications and feeding materials sit ready to be injected into Alex. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
8manb_N8A9093 Mother Jenessa Gerard-Pateakos, looks on as Alex watches television, while nurse Stephani Taber massages his back. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
9manb_N8A9050 Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
10manb_N8A9187 Jenessa Gerard-Pateakos holds on to her son Alex's hand before sending him off to school in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
11manb_N8A9140 Nurse Stephani Taber performs chest physiotherapy on Alex before going off to school in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
12manb_N8A9232 Jenessa Gerard-Pateakos enjoys a moment with her son in the morning before sending him off to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
13manb_N8A9228 Nurse Stephani Taber, injects fluids directly into Alex's stomach as he is unable to eat. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
14manb_N8A9253 Jenessa Gerard-Pateakos enjoys a fun moment with her son in the morning before sending him off to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
15manb_N8A9059 Alex holds on to a teddy bear as nurse Stephani Taber massages his back. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
16manb_N8A9265 A stray cat that the family has adopted sits next to Alex in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
17manb_N8A9030 Mother, Jenessa Gerard-Pateakos, prepares to go to work, as nurse Stephani Taber uses an inflatable device to loosen secretions to prepare Alex before he goes to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
18manb_N8A9131 Jenessa Gerard-Pateakos, mother, looks on as nurse Stephnai Taber performs chest physiotherapy on Alex before going to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
19manb_N8A9166 Nurse Stephani Taber brushes Alex's teeth first thing in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
20manb_N8A9177 Jenessa Gerard-Pateakos enjoys a moment with her son in the morning before sending him off to school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
21manb_N8A9283 Jenessa Gerard-Pateakos, mother, looks on as nurse Stephani Taber uses a lift to transport Alex from his bed to his chair. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
22manb_N8A9311 Nurse Stephani Taber and mother Jenessa Gerard-Pateakos set Alex into his chair. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
23manb_N8A9320 Nurse Stephani Taber puts on Alex's sneakers before going to school in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
24manb_N8A9328 Jenessa Gerard-Pateakos, mother, wheels her son Alex out to the wating bus that will take him to school Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
25manb_N8A9338 Alex is tied into the bus that will bring him to school in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
26manb_N8A9366 Assistant Mimi Wicker prepares Alex's tablet shortly after arriving at school. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
27manb_N8A9414 Assistant Mimi Wicker, helps Alex particpate in a game using a ball upon arriving in class. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
28manb_N8A9390 Alex and his classmates play a game using a ball after arriving at home room in the morning. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
29manb__MG0742 Assistant, Mimi Wicker, sits with Alex, as his classmates play a game of toss the ball first thing in the morning after arriving at home room. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
30manb_N8A9409 Sixth grade teacher Cathy Sinnott outlines the day for her class. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
31manb_N8A9443 Nurse Stephani Taber, wheels Alex to his next class at the Sippican School in Marion. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
32manb__MG0763 Assistant Mimi Wicker, helps Alex beat a drum in music class. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
33manb_N8A9427 Alex's classmates, many of whom have been his classmates since pre-school, treat Alex like any other sixth grader in their class. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
34manb_N8A9480 Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
35manb_N8A9522 Alex looks on as his 6th grade classmates dance in music class. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
36manb_N8A9548 Classmates gather around Alex to watch a video on his tablet that he wants them to see. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
37manb_N8A9569 Sixth grade teacher Cathy Sinnott asks Alex how his day is going. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
38manb_N8A9593 Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
39manb_N8A9599 Assistant Mimi Wicker helps Alex with his geography work in class. Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG
40manb_N8A9603 Alex Pateakos, who suffers from Spinal Muscular Atrophy type 1, wasn't expected to live past a year with this severe disorder, but thanks to loving support, he's currently in 6th grade at the Sippican School in Marion, MA. While he is not able to move or speak, Alex can communicate using a tablet that senses where he is looking on the screen. PETER PEREIRA/THE STANDARD-TIMES/SCMG